Monday, 19 September 2011
Life, love and work
Much has happened since I last wrote. I met a lovely man a year ago through eHarmony of all things! I honestly wasn't expecting online dating to work I just thought I'd do it for 3 months to help with re-socialising myself after the illness. (Which incidently was ME. I could say 'is' ME as I'm still not anything like up to full health yet.. but I prefer to think of myself as recovering from it than having it as I'm just sooo much better than I was - really now it's just a case of slowly building my strength on all levels.) Anyway, he was willing to drive over an hour to see me from the beginning and now that I had to move for work it's more like 1h30 but this is still no issue and I've seen him virtually every weekend since we met. Now that I can drive again it takes me 2 hrs to get to his (I have to take a break halfway through) but relearning how to drive has been fun... though perhaps not all the tight car parking spaces at work eeshh! Still it's nice to have the freedom.
So in December last year I started working 3 days a week as a contractor. Obviously going back to work was a bit of a shock to the system even after having done charity work and getting my fitness up. I had lots of support from those I love so I was able to make the adjustment ok. My new manager was supportive and allowed me to spread my hours out which helped a lot initially and the fact that the Christmas break came after only a couple of weeks helped as well. So I've progressed through the year and am a lot stronger now than when I first started (though I do keep having to remind myself that!). The main barriers still remaining are bright light/ rapid movement and the fact that every time I try to do any exercise I get too tired not the day after but the day after that. My exercise levels went down to nothing on going back to work because all my energy was needed just to manage the essential stuff. I'm trying to figure out some way to add in something low level enough that I can properly establish it into my routine and thereby have something to slowly build on.
So all in all life is good. Being a contractor means work is uncertain but it has meant I can afford to live off only 3 days work a week so really it has enabled me to go a long way to being back on my feet again.
Hope everyone is recovering well :)
Saturday, 24 July 2010
Update
Thursday, 28 May 2009
The ball is rolling...
Tuesday, 28 April 2009
There and back again... and a solution!
Tuesday, 21 April 2009
Too ill to blog...
Saturday, 4 April 2009
A visit with a "specialist"...
Friday, 27 March 2009
A good week and a decent doctor
Sunday, 22 March 2009
Symptom list
Summary of Current Symptoms
Chronic fatigue and miscellaneous symptoms
Fatigue
- General muscle weakness e.g. too fatigued to eat (with plastic cutlery) without taking breaks to rest
- Extreme muscle weakness post exertion (i.e. unable to move arms for a day after lifting something too heavy, e.g. a plate)
- Flaring muscle pains (become increasingly frequent if I start to push my limits or have over exerted myself)
Hyper sensitivity
- Noise sensitivity –very tiring and heightened further during sinus blockages. High pitched, loud or compound noises are the worst.
- Light sensitivity – as above
- Skin – accidental knocks hurt more than they should
- Dizziness - on going from lying to sitting or sitting to standing (pressure drops).
Cognitive
- Inability to multi-task at all – even hearing sounds from two different directions is too much and tires me.
- Short-term memory recently became very bad – struggle to hold something in my mind for longer than a minute or two.
- Sometimes struggle to put sentences together (use wrong words) and can no longer do simple calculations in my head
Other
- Recurring lung soreness, sore throat and ears
- Problems swallowing food
- Dry skin getting drier
- Recurring yeast infections
Current Approach:
Extensive rest – currently resting in bed, in silence doing nothing, for 10 or 11 hours a day just to have the energy to get up and eat meals.
Switched to plastic cutlery so not so tiring to eat. Also use plastic plates, bowls etc. because they are lighter and quieter. I drink from plastic cups using a straw.
Glutamine supplementation -helps muscle strength recovery and prevents muscle wasting
Prescription antifungals (was nystatin, now diflucan)
Upper respiratory
- Chronic sinusitis (sinuses blockages sometimes lead to migraines)
- Dustmite allergy
- Hypersensitivity to anything in the air – smoke, dust, mold, pet dander, pollen, any fragrances or chemicals.
Current Approach:
Saline sinus rinse 2x daily
Saline drops/sprays for dry nasal passages
Dust masks
House is vacuumed and dusted every 5 days with Dyson
Air purifier in bedroom
Antihistamines – nasal spray helps when exposed to dust, I sometimes take tablets too
Decongestants and paracetamol – when sinuses block off
Supplementation - natural anti-inflammatory/anti-histamine Quercetin, and Bromelain
Immune modulating herbs to boost immune response to infection and reduce allergies.
Anti-inflammatory diet
Digestive
- Food intolerances:
- Gluten – a small amount causes intestinal inflammation that hurts for 3 days (have avoided wheat since the age of 14, now any gluten is a problem)
- Dairy – makes sinus congestion worse
- Sugar – causes yeast infection to flare as well as stomach pain, gas and indigestion (fruit and starches also limited for this reason)
- Yeast – gives me hives
- Salt – makes my stomach lining hurt
- Garlic – indigestion and headaches
- Alcohol
- Sensitive stomach lining – sometimes hurts just to put anything in it, even water. Taking a couple of pain killers for period or sinus pain always triggers this for a few days.
- Hypoglycemia
- Nausea (worse when sinuses are blocked or draining)
- Old constipation problem returning
- Occasional flare ups of probable diverticulitis (from prolonged bad constipation when growing up)
Current Approach:
Careful balanced diet of home-cooked food to control digestive symptoms, hypoglycemia and yeast infection flare-ups.
Supplementation with high quality vitamins and probiotics.
